Hypermobility
There’s a real void of support for people with Hypermobility Spectrum Disorders and Hypermobile Ehlers Danlos Syndrome.
In their most common forms, genetic markers haven’t been identified, but geneticists are often tasked with diagnosis. All the guidelines say that people with connective tissue disorders should avoid surgery, but often only referral to a surgeon is offered for managing the most common pains and injuries.
The Ehlers Danlos Society has assembled an ever-growing set of resources for people with HSDs, hEDS and CTDs. However, where I practice in northern New England, there’s a shortage of providers and support, with a particular lack of recommendations for CTD-literate care in Maine. Along with a small group of other local clinicians and advocates, I’m working to help fill that gap.
Every person is their own ongoing experiment when it comes to the array of challenges associated with CTDs and hypermobility. For clinical problems, I’m happy to be your partner. You can use my experience to help make sense of your symptoms; we can usually identify patterns and solutions that other people have, too.
Education and recommendations last updated January 2023. Follow on Instagram for a steady stream of resources.
